"Welcome To Chiari Lifeline."

Chiari Malformation is a serious neurological disorder where the cerebellum, the bottom part of the brain, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine. There are over 100 reported symptoms that are caused from CM. Those most common include; severe headaches, fatigue, general imbalance, memory problems, visual disturbances, dizziness, just to name a few.

CM affects about 1 in 1,000 people and this number continues to grow. Still many are left suffering and go years without a proper diagnosis as many doctors are yet unfamiliar with this condition.

If you or a loved one is affected by Chiari please visit the links provided below. Together, we can make a difference!


December 22, 2007

Is It Enough?

"Christmas night. As the evening falls like the curtain on a long-awaited show, I hold my children, just one last time this season, in the warm bath of the Christmas tree lights.

And I wonder.

Did the Yuletide parties and gatherings fill them with a sense of family? Did the Christmas rituals unite them in a shared commonality with their fellowmen? Did the music of Christmas heal them of a cynical world and inspire them with hopes of something greater? Did the gifts they shared teach them that the greatest gifts are received in the giving? Did the once -wrapped presents of Christmas remind them of a greater gift given many Christmases ago?

And I wonder.

Is there enough awe in my children, enough magic left, to save a world? For within my heart I lament a great truth...that the only promise of childhood is that it will end. And I wonder what I have given them to take its place.

And is it enough?"

Wishing you and yours a very Merry Christmas and
Happy New Year.



Read more!

December 13, 2007

Rosanne Cash CM Success


Many of you might have heard the country singer Rosanne Cash, daughter of the country legend Johnny Cash, recently underwent decompression surgery for Chiari. She is reported as doing well and is looking forward to getting back into the recording studios soon! The story of her success is truly an inspiration to those of us with CM.

Please visit the following link to read her story: http://www.cnn.com/2007/SHOWBIZ/Music/12/12/people.rosannecash.ap/index.html
Read more!

December 08, 2007

Happy Holidays!

As a member of the WACMA message board, I've read several posts from other members located in Central Florida who were interested in knowing if there is a Chiari support group here locally. I too was looking for one, found none, so I decided to start one myself!

You can find it under Yahoo Groups as Central FL Chiari Support Group or simply click on the Yahoo icon at the bottom of this page to join! Eventually, I hope to set up meetings to be held monthly.

It's so important to have someone who truly understands exactly what you're going through. If you need an ear to listen, a shoulder to lean on, or a word of encouragement, you'll find it here.

Happy Holidays!
Read more!